Kaleb's first surgery went well and he had no complications when he was under. When we saw him afterwards our hearts just broke as he laid there quietly with a whimper here and there. The swelling that starts is awful, there are no words to describe it, but tremendous, and your baby’s head looks like a huge blown up balloon and your child becomes unrecognizable to you.

Kaleb’s eyes began to swell shut and that was one of the worst parts. But as soon as he could open them up a crack it was better for him. Kaleb wasn't progressing along like other Craniosynostosis patients should. He was still refusing to eat, and Kaleb was in a lot of pain.

Before we knew it he needed another blood transfusion since he was getting weak and losing a lot of color. He continued to not get better and as the swelling started to come down he still refused to eat and was whimpering in a lot of pain. Kaleb started to lose his color fast, was white as a ghost and he started to become lifeless.

Kaleb was too weak to even open his eyes and we saw that something was wrong and he was really sick. It was then that the nurses and doctors were running around scrambling telling us that Kaleb developed a post-op hemorrhage and he had a huge blood clot on the right side of his brain. Our baby wasn’t sick, he was dying.