I heard this song one day playing on the radio and I just fell apart crying at the wheel. It was a message I felt my soul needed to hear because everything is getting to be a little much for our family.
I truly felt at that moment it was meant for me and anyone else who is going through any hardship <3 The point is..... Even though we feel weak and broken down, to not let that evilness keep breaking chunks of our soul away. Even when our strength is gone, we need to ask God to feed us more. I have never felt like I couldn't stand on my own two feet anymore and at this point, I needed Him to carry me for awhile.
I felt ashamed that my weakness has got the best of me and I started to break. I felt shame, especially with this AMAZING little boy we have and he fights everyday through all his problems and yet continues to be a ray of sunshine.. Always a smile on his face :))
Kaleb has now had a total of 194 Dr. appts ( that includes his surgeries ) and a total of 31 scans ( includes x-Rays, MRI's and CT's ) He still has his bowel issues that we are going to the Children's Hospital of Wisconsin for. Kalebs appt. is on Monday July 13th. Kaleb also has the hole in his heart that hasn't closed up yet that should of closed by age two.... he will be three in August. We also have his teeth that need surgical work done that we have been going in for treaments every five weeks to delay surgery.
As you can see we have a lot on our plate right now. We come asking for prayers for our little guy and our family. Prayers to remain STRONG, to not give up on HOPE and FAITH and to remain strong as a family unit <3 Please keep our little man on your mind and in your heart for Monday.
That is a big appt for us and we will know if he gets officially diagnosed with a motility disorder. The motility disorder that the two hospitals, CDH, Lurie Children's and our gastro dr thinks Kaleb has, is something called pseudo-obstruction motility disorder diease. We pray that he does not have this disease because at this time it is incurable.
So please say a prayer for him on Monday July 13th <3 We don't know what the appt will entail or how much testing they will do. So pray for our little guy to be brave. Sorry we haven't updated in awhile... It's just been a lot.
Thank you for taking the time to read about our baby :) and please click on the link below and listen to the song " Cast my cares " It may also help you in your time of needing more strength :) Thank you for all the love, support and prayers. Thank you for the beautiful cards and uplifting beautiful text messages.... Means the world to us! Hope all is well with you and your family! Take care and God Bless xoxo
Cast My Cares: https://www.youtube.com/watch?v=bKuAMmTqUbs
Proud Mommy of a Cranio, Chiari and VSD Baby!!!
"God only gave you this life because he knew you were strong enough to live it"
"People are like stained glass windows. They all sparkle and shine when the sun is out. It is when the darkness sets in that HEROES are revealed, as their mesmerizing courage shines through from the light within" - Elizabeth Kubler-Ross
LOVE for Dallas!!!!
Our niece Haley next to Kaleb's heart on the wall at school